So tired of being tired.
Hi I was diagnosed with chronic myeloid leukaemia 24 years ago this coming September. Having to inject myself everyday with medication (interferon) was very debilitating . So when I was put on a tablet called gleevec. Which is a chemo drug that I have to take everyday. I was told this would improve my energy, I was so hopeful of getting back to a nearly normal life, I was wrong. Although it does give me a bit more energy, I am still struggling with fatigue and am now resigned to being like this always. I'm so lucky to survive, as was only given 3 to 5 years to live. The fog brain that never goes away and not being employable because of fatigue, makes me feel like I am fighting 2 illnesses at the same time. Although I am so happy to be alive, at times I am just tired of being tired. I would love to know how other survivors cope and have tips on coping with their illness.
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I hate this fatigue!!! I go months feeling fine then I over do it and spend days recovering, feeling tired, no motivation, aching allover but at least I’m still here!
That’s what I tell myself to keep going. It could be so much worse, but at this precise minute I HATE THIS FATIGUE.
It makes me think of my treatment and how crap I felt during and immediately after, it makes me think why me, why have I gone through all that to feel like this. Then I remember……
These days are few and far between and I am a fighter, I will be fine and ready to go through this again in a few months when I once again forget my limitations and set myself up to feel like this.
Thanks for listening xxx